Some Early CRPS Survey Results Are Released

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By Ed Coghlan.

In February, we ran a story on the National Pain Report about a survey the RSDSA was running on pain flare-ups and we asked our readers to participate.

A flare-up or breakthrough pain is defined as a transitory exacerbation of pain that occurs on a background of otherwise stable persistent pain.

We heard back from RSDSA’s chief executive Jim Broatch this week who said over 2,000 people participated in the survey and some “enlightening preliminary data” from the survey will help the organization get a better picture of the people who are interacting with his organization.

Consider these “early returns” because they are continuing to mine the data, but here are some interesting highlights:

  • 53% of the respondents have had CRPS for longer than ten years
  • 60% are receiving opioid therapy for their pain
  • 68% do not consider their pain under control
  • 65% of the respondents experience daily or flares-up several times a week.

An unexpected flare-up of one’s CRPS, fibromyalgia, or preexisting chronic pain can quickly become an unbearable situation. RSDSA wants to better help individuals who are experiencing a pain flare-up or breakthrough pain (BTP). A flare-up or breakthrough pain is defined as a transitory exacerbation of pain that occurs on a background of otherwise stable persistent pain.

Chronic illness is hard to treat. For chronic pain sufferers (or Warriors as some prefer), an unexpected flare-up of one’s CRPS, fibromyalgia, or preexisting chronic pain can quickly become an unbearable situation.

There’s no known cure for complex regional pain syndrome (CRPS), but a combination of physical treatments, medication and psychological support can help manage the symptoms. However, some people experience continuous pain despite treatment.

We’d like to thank you for participating in the survey. As more information is developed and analyzed, we will further report on the results.

In the meantime, feel free to share your own experiences in our commentary section.

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